Thursday, December 11, 2008

Moved & Medical Update...

As I sat down to start typing this out we heard our first shooting in the new house. Literally about 10 feet away from our front windows. So to say the least, this is NOT a good neighborhood, and I will NOT be letting Nadine play outside anytime soon. I am also buying something to go over her windows so you can't see light outside for any reason.

Well we did get moved, and we love our house. It's just the neighborhood, that until tonight we thought was...well not the best...but liveable. Just getting moved here was a big ordeal, which I hope to blog about another time. Now for the medical updates.

I had a fetal echo/ultrasound yesterday and met briefly with my new doctors. I met the high risk OB and the cardiologist, both who were super nice. Here is what I learned...

1. I will have to deliver C-Section due to David's swelling in his head. He already weighs almost five and a half pounds, mostly due to me being diabetic we think. But because his head is still filling with fluid it won't be possible for me to have a regular delivery.

2. For sure we know that he has ventricular septal defect, aortic overriding, and TOF.

3. Possible pulmonary atresia, which means he doesn't have a pulmonary artery from what I understand. I have another ultrasound in 4 weeks, and the doc will try and see better then and if he can't we will have to wait until David is born to know for sure.

All of this is really having an effect on me emotionally. I just don't know how to deal with it all, how to just be strong and say it's okay that my baby is VERY sick. I can't do that yet. I love him no matter what we have to face, and will be strong for him once he is here but until then I am terrified. I can hardly think, sleep, or do anything without being sidetracked. Pray for us.

7 comments:

Vanessa said...

Hi, my name is Vanessa. I am friends of the Roller family and saw your post on baby Isaac's blog. I just wanted to stop by and introduce myself.

My daughter is 2 years old and was born with ToF and DiGeorge Syndrome. We found out about our daughters CHD when I was 17 weeks pregnant so I know how you are feeling right now. It is SO overwhelming. So are you living in California now? I am actually a coordinator for a support group called Mended Little Hearts. If you want to see if there is a group close to you all you have to do is go to www.mendedhearts.org

We have a blog for our as well but it is set to private. If you would like to view our blog just email me at nessa1880@yahoo.com and let me know who you are.

Take care,
Vanessa

Terri@SteelMagnolia said...

You are in our prayers, that's for sure. This is a tough tough situations.

I am sorry you're going thru this... I didn't have a clue when I was pregnant, we had all kinds of tests when I was pregnant, but nothing showed up. We had a fetal echocardiogram, blood flow mapping etc and all seemed fine...

then, Matthew was born 2 months premature ... and 4 days later we got the news. At first I thought I was glad I didn't know while pregnant, but now... I wish I would have known.... we would have done a couple things differently.

Just know, you have all of us heart moms now... they are EXTREMELY SUPPORTIVE AND HELPFUL...

we will be here to help you..
and God... He is always there even if you think He's not.

Lauren said...

I'm so sorry that your neighborhood isn't what you'd hoped it would be. You guys are constantly in my prayers and I hope things start to get better on the home front soon.

Praying for Baby David everyday!!

Barbara said...

I just wanted to wish you, your family and especially little David, wellness, peace and all good things.

Tonia said...

Praying for a miracle!!
Tonia

Jane said...

Hi, my name is Jane. I also saw your post on the Roller family blog and wanted to offer my support.

My daughter Ramona is two (same birthday as Vanessa's daughter!). We found out when she was two months old that she has TOF with pulmonary atresia and 22q11 (also known as DiGeorge syndrome. She has had two open heart surgeries and is currently not eligible for a full heart repair. Ramona has been on a feeding tube, had 24 hour oxygen and has some other health problems BUT she has a good life and is a happy little girl.

Many people told me when she was first diagnosed that the first year was the hardest and they were right! As the months go by things get easier and we now have what I consider a "normal" home life.

If you'd like to check out our little family, go to www.RamonaMae.com.

I'll be thinking of and praying for you and yours...

Karin said...

I am always thinking about you guys! Love and miss you all. I always keep you and the family in my thoughts and prayers.

Nikki,

I know this is going to be hard and please use me to be your outside support. You know what I have been through with Nathaniel and even though it is not the samethings the stress and everything thing else is the same. Just know I am always here for you