Thursday, February 19, 2009

I'm Back...

Yes I am back on my new Acer laptop. In case you don't know it's one of those cute little tiny ones but I love it! I was getting really depressed here all day long, all alone, no internet so my mom and Chris went in halfs and bought it for me. I love them so much!

Let me tell you the highlight of my day is getting the mail. Just something to look forward too, I don't care if it's bills it's just part of the day when I know it's halfway time for Chris to get home. The other day I was caught completly off guard. David's death certificate came in the mail. I lost it. I never recieved one with Alyssa, I have her birth certificate but I never got a death one.

I held the paper and cried for hours until Chris got home. I had also recieved a letter from the doctor who treated David in the hospital with some diagnoses. So I feel the need to share them with you. I feel you are all part of my family, everyone has loved David so much and I want to give you all some of the explanations we got.

Pulmonary Hypoplasia
Pulmonary hypoplasia is a developmental abnormality of the lung characterized by a decrease in the number of alveoli, cells, and airways, eventually resulting in decreased size and weight of the lungs. Although pulmonary hypoplasia is occasionally a primary condition, most cases are secondary to other abnormalities that prevent complete pulmonary development. Pulmonary hypoplasia is frequently associated with malformations of the cardiac, genitourinary, gastrointestinal, and musculoskeletal systems. Bronchopulmonary malformations are also associated with this disease.

Tetralogy of Fallot
Tetralogy of Fallot / TOF is a cardiac anomaly that refers to a combination of four related heart defects that commonly occur together. The four defects include:

Pulmonary stenosis (narrowing of the pulmonary valve and outflow tract or area below the valve, that creates an obstruction (blockage) of blood flow from the right ventricle to the pulmonary artery

Ventricular septal defect / VSD

Overriding aorta (the aortic valve is enlarged and appears to arise from both the left and right ventricles instead of the left ventricle as occurs in normal hearts)

Right ventricular hypertrophy (thickening of the muscular walls of the right ventricle, which occurs because the right ventricle is pumping at high pressure)

Skeletal Dysplasia
Fetal skeletal dysplasias are a complex group of developmental bone and cartilage disorders, which usually result from mutated genes. Symptoms can include abnormal growth of the limbs, absence of a limb, duplication of fingers or toes and many other deformities. There are over 175 different types of skeletal dysplasias.

Skeletal dysplasia occurs in approximately one in every 4,000 births. There are various modes of inheritance in the skeletal dysplasias. Some are sporadic (not inherited). Depending on the mode of inheritance, the chance of having another affected child is different. For example with an autosomal recessive inheritance, non-affected parents would have a 25 percent chance of having another affected child.


So my lil David had more problems than he could handle, but he fought as hard as he could. I pray one day we do get the chance to have a healthy baby, but at this time in my mind I am not considering it. I could never put my husband first off, and my family through loosing a 3rd baby. We will wait on genetics tests and then maybe in a couple years decide.

Also Alyssa's first birthday is going to be on Feb. 22nd. I don't know how I will get thtough it but I will. We bought Disney Princess decorations so I can make a cake, and we will celebrate with Nadine.

5 comments:

mina said...

It must be great to be able to re-connect with the cyber world. I continue to think of you and pray for you often.

Susan said...

Hey good news about your computer. Your sweet little boy had a lot going on and your right, with his weight size, he was a fighter. You have some sweet pics of that little boy to always cherish. I'm glad you have your Nadine to help get you through difficult days and of course, your husband. One day at a time.

Michele said...

I remember the days all their death certificates came. They were rough days. There's nothing that quite compares to seeing it in print and it hurts so much.

We don't know what God asks us to deal with illness and suffering. But your son inspired you- he inspired all of us- and I think that matters in this world. And now, he and his big sister, and our clan, and the babies of the other moms and dads who know this loss- they all wait for us and celebrate until we are with them.

I'm thinking of you guys so much and sending prayers your way daily. Big hugs...

John Gensic said...

I have recently grown addicted to blogging, so I understand your frustration about the computer. We are praying for you in all of these hard times.

Jenna

Amyacl said...

So glad that you are connected again! We are keeping you and your family in our thoughts and prayers.